Local charity
Youth at Heart are a charity committed to young people aged 13-24, and their families, who are living with Congenital Heart Disease (CHD) in South West England and South Wales.
They aim to empower, inform and support young people to live their best life.
Local charity
A parent to parent support network for families who have a child with a heart condition. Can be found online on Facebook.
Local charity
Providing support to local families who have children with heart conditions.
Local charity
Working with children and their families living with congenital heart disease. Aims to provide social events for children and their families around the south west region.
Local charity
A Down Syndrome Support Charity working directly with families, professionals and all those involved with the care and education of children and young people who have Down Syndrome.
Local charity
A Plymouth based charity that provides accommodation close to their local hospitals (Derriford and Nuffield); grants to local communities and hospitals to improve health and wellbeing; and support and counselling to Hospital Hotel guests, their carers & relatives.
National charity
Charity providing support and advice on congenital heart disease for patients of all ages.
National charity - children
Dedicated to supporting and empowering anyone affected by the diagnosis of a single ventricle heart condition – or half a working heart.
National charity - children
The leading UK children’s heart charity works with individuals and organisations concerned with children and young people with health and educational needs due to acquired or congenital heart conditions.
National charity
Charity offering support and information relating to heart conditions associated with Down's Syndrome.
National charity - children
Supporting families affected by DiGoerge syndrome
National charity - babies
Supports babies with serious heart conditions, their families, and the NHS health professionals who treat and care for them.
National charity
Working together to improve the diagnosis, treatment and quality of life for all those affected by arrhythmias.
National charity - children
Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.
National charity - children
Supports children with heart disorders and their families.
National charity
Aims to save lives, providing information, funding research and medical equipment to prevent premature sudden cardiac death.
National charity - young people
Off The Record (OTR) is a mental health social movement by and for young people aged 11-25 living in Bristol and South Gloucestershire.
National charity - young people and adults
The only UK charity supporting young people and adults with (congenital) heart disease (ACHD).
National charity - adults
Voluntary organization fighting heart disease and stroke.
National charity - adults
A community comitted to caring for adults with CHD, and their families.
National charity - adults
Specialist national charity for people affected by cardiomyopathy.
National charity - adults
The only charity in the UK dedicated to people with pulmonary hypertension.
National charity - adults
Provide and informative online website and forum for patient's and their family and friends to access useful information on all matters relating to transplant.
The Marfan Trust undertakes medical research into Marfan syndrome, supports those with the condition and raises much needed awareness.
National charity - adults
Supports those affected by Marfan syndrome and related conditions
Local charity
The official charity that raises funds for Bristol city centre and Weston hospitals. Working with inspirational people, the charity aims to make a difference to every patient and every condition.
A national patient charity for Aortic Dissection in the UK & Ireland.