Useful Links for Young People and their Parents/Carers 

 

Youth At Heart

Introduction to the Adult Congenital Heart Disease Service - Bristol (video) 

Information about ACHD psychology, Bristol 

British Heart Foundation 

Somerville Heart Foundation  

University Hospitals Bristol and Weston - Cardiac transition page 

 

 

 

Leaflets and Information

 

Coping with Self Harm

Young Person’s Guide to Transition and the Adult Congenital Heart Disease (ACHD) Service (University Hospital of Wales, Cardiff)

University Hospitals Bristol Transition Website (External link)

 

Ready, Steady, Go

 

The ready steady go transition programme - Easy read version

The ready steady go transition programme

Ready, Steady, Go - READY Questionnaire - Easy read version

Ready, Steady, Go - READY Questionnaire

Ready, Steady, Go - STEADY Questionnaire - Easy read version

Ready, Steady, Go - STEADY Questionnaire

Ready, Steady, Go - GO Questionnaire - Easy read version

Ready, Steady, Go - GO Questionnaire

Ready, Steady, Go - Parent Questionnaire

 

QR code posters

 

QR code poster for CHD teenagers - understanding your heart: a series of booklets from the British Heart Foundation

QR code poster for CHD parents - understanding your child's heart: a series of booklets from the British Heart Foundation

 

Tour of the Bristol Heart Institute

 

Young people born with congenital heart disease will transfer to adult services when they are 17 years old, the majority of whom will require lifelong follow-up. We know that making the switch from paediatric to adult services may feel daunting for some of our young patients, for a number of reasons.

To help answer some of their questions and address any concerns, a film has been created to give patients and their families an idea of what to expect when they come to the Bristol Heart Institute for treatment.

 

 

Resources from the British Heart Foundation

 

My Heart Op: A Young Person's Guide to having Heart Surgery (External link)

Support for young people - British Heart Foundation (External link)

Support for young people preparing for surgery - 9 short films (External link)