In this section you will find clinical information (guidelines, protocols and toolkits) relevant to the care of Adult patients. 

The information is listed in alphabetical order.  

If you have any suggestions for further documents to be added, please email: Sheena.Vernon@uhbw.nhs.uk 

(Please also see Pregnancy for information on pregnancy and contraception). 

 

CHD Standards

 

Clinical Information

ESC Guidelines on Endocarditis (updated August 2023)

ESC Guidelines on Cardiomyopathies (updated August 2023)

ESC Guidelines on Management of Adult CHD (Updated 2020)

 

Orientation to the Bristol Heart Institute

ACHD Consultants and their speciality for referral from BRHC to BHI (October 2024)

 

Dental (see also Dentistry page)

Dental Care Pathways for Adults with Congenital Heart Disease

Endocarditis BMJ Information (2023)

ESC Guidelines on Endocarditis (updated August 2023)

 

Exercise

ESC Guidelines on Sports Cardiology and Exercise in Patients with Cardiovascular Disease (Updated 2020)

 

Guidelines

SWSW CHD Network Guideline - ACHD Echo

SWSW CHD Network Guideline - Atrioventricular Septal Defect 

SWSW CHD Network Guideline - Atrial Septal Defect

SWSW CHD Network Guideline - ACHD Referral in South West

SWSW CHD Network Guideline - Bicuspid Aortic Valve and Associated Aortopathy

SWSW CHD Network Guideline - Coarctation

SWSW CHD Network Guideline - Cyanosis

SWSW CHD Network Guideline - Ebstein

SWSW CHD Network Guideline - Fontan

SWSW CHD Network Guideline - Pregnancy and Contraception in Patients with Heart Disease 

SWSW CHD Network Guideline - Right Ventricular Outflow Tract Obstruction 

SWSW CHD Network Guideline - Subaortic Stenosis 

SWSW CHD Network Guideline - Supravalvar Aortic Stenosis

SWSW CHD Network Guideline - Congenitally Corrected TGA

SWSW CHD Network Guideline - TGA (previous arterial switch)

SWSW CHD Network Guideline - TGA (previous Mustard Senning)

SWSW CHD Network Guideline - TGA Rastelli

SWSW CHD Network Guideline - Tetralogy Of Fallot Repaired

SWSW CHD Network Guideline - Ventricular Septal Defect

 

Heart Failure

ESC Guidelines on Heart Failure 

 

Lesions

Specific Discharge Guidance at Transition for Minor Lesions

AtrialSeptal Defect

Aortic Stenosis

Coarctation of the Aorta

Ebsteins Anomaly

Fallots Tetralogy

Marfans Syndrome

Patent Ductus Arteriosus

Transposition of the Great Arteries

Ventricular Septal Defect

 

Image sharing

Clinician's guide to image sharing

 

Intervention

Elective referral for complex electrophysiology and devices procedures (ACHD patients)

24/7 specialist advice for ACHD patients including pre-operative assessment for non-cardiac surgery

 

Nursing Information

CHD Heart Diagrams (external link)

CNS Clinic Continuation (UHBW)

Congenital Heart Disease Clinic Information


 

Patients - Self-Referral

Management of patients who self-refer out of hours to adult congenital heart disease services

Access to second opinion and referrals to other centres/services

 

Surgical

ACHD Joint Cardiac Conference (JCC) Terms of Reference

Pathway for cardiac surgery (ACHD patients)

 

Transfer

Transfer and repatriation arrangements for adults with suspected or confirmed congenital heart abnormality 

Referral for ventricular assist device therapy or cardiac transplantation 

 

Transition

Bristol congenital heart centre transition process